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Starting Something Different

after a long time in the dark

My name is Sam. I am 20 years old, and I am from a small town in Michigan. I am currently studying psychology, managing a dining hall on my campus, and attempting to write and perform music on top of my bustling academic and work life. My favorite color is blue, I love musical theater, and I have borderline personality disorder.

I recognize that in making this blog, I am sacrificing the idea that my disorder defines my life. To me, I am a puzzle, with several pieces creating who I am. As much as I want to equate liking the color blue to me having a mental illness and simply writing it off as another one of my traits, the pieces are simply not the same size. In reality, mental illness has driven every facet of my life for as long as I can remember, and I have recently emerged from a particularly dark cloud of horrendous symptoms. It is truly one of the biggest pieces of my puzzle, and I can not downplay that any longer.

I’m making this blog for two reasons. The first is to help my friends, family, and anyone else who cares understand my experience with mental illness. I am no expert on the disease, but I am certainly an expert on what I’ve been through because of it, so of course I do not speak for everyone with borderline, but I hope that my experience sheds some light on some of the things people with borderline go through, and it helps destigmatize the disorder. On the other hand, I make this for myself. I have been silent for too long on my issues with mental health. I have struggled quietly because I didn’t feel as though I had anything important to say or contribute to the discussion of mental health. I have come to realize that my story holds value, the things I go through are important, and I can contribute to something by sharing a piece of my life. This allows me to have a platform to say what I want about my life, which to me is extremely empowering.

I don’t know how much I will update this blog, but I’m hoping that by creating this outlet, I have created something important in the discussion of mental illness. Bear with me as I attempt to put my thoughts into written word.

-Sam

My BPD Diagnosis Story

the beginning of a deeper understanding of myself

I’m not particularly smart, well-educated, or a good writer. I’ve read so many blogs since starting my own blog that beautifully put the experience of having BPD into words, words I could never express myself, hard as I try. There is, however, one thing I am an absolute expert at: my own story. So I’m going to stick to what I know with this one, and talk about my experience discovering I have BPD.

TW: Suicide, self harm, hospitalization

In my 21 years of life, I have had 14 suicide attempts, varying in degree of severity. I was diagnosed with depression when I was 15, but had been self harming for as long as I can remember, hitting myself, scratching myself, and even biting myself on occasion. One of the few distinct memories of my childhood that I have is from around the third grade, when I wrote on a blank sheet of paper “once this paper rips in half I will kill myself.” For every “mistake” I made, I would rip the paper a little bit more. I remember my sister finding it, chastising me for writing something so serious that I knew nothing about. I threw it away.

I always knew there was more than depression going on. I was extremely hard on myself, always beating myself up for every little mistake I made. I would go to bed at night and analyze everything that I did that day, every social screw up I had, every wrong answer I said in class. This was different from my peers who were also depressed. Along with the darkness that engulfed my life and constant sadness I felt, there was something about the core of my character that was messed up, something that was ruining my friendships, my academics, and my experience in life.

It got worse when I discovered cutting. I will never forget the rush I first got sliding the blade of a pair of scissors across my arm, the feeling of something inside of me stirring as I slashed my arm. I felt relief for the first time in a long time, like I was finally being adequately punished for my mistakes. I have been habitually self harming since. I was hospitalized shortly after for my first suicide attempt. I was 17. During that hospitalization, I was forced to come out of the closet by the doctor, which led to a string of trauma and some of the worst months of my life.

I was hospitalized again at the beginning of college, when I was 18. I had a short stay, my main goal was trying to get back to studying so I didn’t fall too far behind. After this hospitalization, I started DBT therapy, which ultimately saved my life. I became extremely close with my therapist, who helped me work through the trauma of my childhood, and helped me develop feelings of self confidence and skills in dialectical thinking. I would not be where I am today without her.

I stopped therapy about a year ago due to financial reasons, and suffered a major relapse back in October. I had my 13th suicide attempt then (my 14th one was late November), where I attempted to slash my wrist in my bathtub. If it wasn’t for my very persistent, loving roommates, I would have died. I was checked into a mental hospital the next day. I spent long days wondering what was wrong with me, why my depression was so aggressive, so different, so incredibly difficult. I had gone years wondering what was wrong with me, why I was the way I was, why I was on my 13th attempt on my life that countless combinations of medications and therapists couldn’t help.

Talking with a doctor during that hospitalization, we got into some of my specific symptoms: irritability, impulsiveness, dissociation, how I feel empty all the time, how I was cutting everyday, contemplating suicide everyday, constantly feeling like I wasn’t worth being alive. She gave me a diagnosis of borderline personality disorder, which was confusing to say the least. I had a couple of friends who had the disorder, but I didn’t really know much about it. The more I talked about it, the more it made sense, and the more my fragmented memories of past began to piece themselves together. I was reading about symptoms that I just previously attributed to being a flaw in my character. Now I realized that my anger, so vicious and self directed, was the result of a developmental of my personality under toxic conditions. With this new information, I was finally beginning to heal.

My diagnosis is only a few months old, and so is my knowledge of the disorder. My education on my symptoms, especially the more complex ones, has been vital to improving my mental health. The more I understand my disorder, the more I improve, and the more I can explain to myself what is going on inside my head instead of hopelessly thinking “what is wrong with me?” I still have rough days. I still self-harm. I still contemplate suicide, but now I am starting to be okay. I am slowly improving myself, slowly beginning to love myself, and slowly, slowly getting better.

Despite this diagnosis helping me discover myself, I now need to learn to separate myself from it. My disorder has haunted me for too long, and while I will always acknowledge that it’s there, I now need to learn to recognize that I am more than it. BPD will always be part of my personality, but I can and will cope with the symptoms. I am worthy of being able to cope. Despite everything I have been through, despite everything I will face, I am worthy of having a space on this Earth. I am worthy of being alive.

-Sam

Splitting

my love hate relationship with everyone

On this episode of “Sam tries to tackle another really big topic,” I’ll be attempting to talk about splitting. Splitting is a defense mechanism that people with BPD use to counteract the intense fear of abandonment that so many of us have. It makes us see many people and situations as either good or bad with no in between. Splitting can be emotionally draining and exhausting, and can damage social relationships. There’s plenty of things I hate about this disorder, but splitting has to be the one of the things I hate the most. Let me give you an example.

I had a friend a long time ago who was incredibly important to me. They were so supportive and kind, and I really enjoyed spending time with them. Despite all of their good qualities, they were, I felt, extremely critical of me. It was small criticisms about my drinking habits and some of my other dangerous impulsive behaviors. I mess up a lot. I’m not trying to excuse my behavior, I never am, but being criticized for things that are a result of my disorder, which is part of my personality, can be difficult to swallow. They, of course, were only trying to make sure I was healthy, that I was okay. Nevertheless, I started to hate them. I started to think that they were an evil, horrible person (they aren’t) and that I needed to cut them off. I blocked them on all forms of social media, deleted their number, and never spoke to them again.

It’s difficult for me to look back at some of the things I’ve done when I was splitting. Not only have I ended friendships entirely, but I’ve said some pretty hurtful things that I did not mean. Splitting can make maintaining relationships extremely difficult, and I often struggle to combat what is rational and irrational when dealing with my feelings towards other people.

Splitting is not only restricted to my social relationships. I am often splitting with my feelings towards myself. I can love myself in the morning and hate myself in the evening depending on my actions throughout the day. The extremely high standards I hold for others I often hold for myself. Sometimes I feel like I’m on top of the world, that I am wonderful and amazing and perfect, and sometimes (most of the time) I feel like I’m the scum of the earth. It’s completely unhealthy, and can often send me spiraling out of control.

I can split with anyone. I’ve done it with my mother and other close family members, my best friends, my roommates, co-workers and acquaintances. No one is safe from my ability to turn on them at any moment. I recognize that it is unhealthy, and dialectical thinking is certainly something I work on in therapy. It’s insanely difficult to try to override the impulses that are attempting to protect you, but it’s necessary to maintain healthy relationships with the people I love.

If you’re reading this to support someone who is splitting, know that it can be difficult, and you must always take care of yourself. It’s okay to give me space, it’s okay to give yourself space, and being aware of what is happening can do a lot for the both of us. That being said, kindness can go a million miles. Splitting is incredibly difficult for the person it is happening to as well as the people they love. I have the upmost sympathy for friends who I’ve suddenly hated, who I’ve suddenly turned on. I know it doesn’t excuse my behavior, but please know I do it in self defense, to combat the aggressive fear of abandonment and loneliness I feel every single day. The best thing to do for someone who is splitting is to try to understand, try to educate yourself, and try to put yourself in their shoes.

I hope this is somewhat clear, although it may be difficult to understand. Please reach out if you have any questions, and thank you for reading.

-Sam

Dissociation

what is it and how to help someone who goes through it

I recognize in writing this piece that I am tackling a huge topic with many facets. There are several types of dissociation, and people experience it in several different ways. There are many articles that tackle this topic better than I do, but I wanted to add my experience with dissociation to the conversation, to help illustrate what it can be like.

Dissociation in borderline personality disorder is not uncommon. In fact, according to “Dissociation in borderline personality disorder: a detailed look.” from NCBI, about 76% of those with BPD suffer from some form of dissociation. This can range anywhere from experiencing “confusion and unexpected mood changes”, to experiencing “dissociative amnesia,” to having a dissociative disorder, such as dissociative identity disorder (DID).

What exactly is dissociation? According to webmd.com (a very official source, I know), “Dissociation is a break in how your mind handles information. You may feel disconnected from your thoughts, feelings, memories, and surroundings. It can affect your sense of identity and your perception of time.” While this is a great description of what dissociation is, it doesn’t really capture what it’s like. Let me use an example.

You’ve had a long day at work. You get in your car, turn it on, turn on your radio, and start to drive, a drive you’ve done hundreds of times before. Suddenly, you’re at your house. You don’t remember anything about the drive, what you saw, or even the music that played on the radio during the last 15 minutes. Your brain went on complete autopilot.

While this is a common experience that mirrors dissociation, and is useful for a boring, routine, car ride home, dissociation is nothing close to convenient. For me, I experience dissociation when my emotions are running high, and I can often dissociate in places when it is inconvenient and unsafe to do so. This is just my brains defense mechanism against really strong emotions, but it’s completely annoying, unhealthy, and worst of all, uncontrollable.

I’ll give you an example of an episode I had about a year ago. I was walking down the street after a rehearsal for a musical I was in. I had just taken on the lead role, and was struggling to learn my lines and the songs that went with it. This rehearsal was particularly stressful, and as I was walking home by myself, I felt the world start to fade away. I had dissociated before, but it had never been that bad, and I desperately tried to get home. I attempted to ground myself to reality, counting the leaves on each of the trees I passed, focusing on the cold wind hitting my face, digging my nails into my hand, but I was struggling. I thought “just get home. Just get home and you’ll be okay. Put one foot in front of the other and you’ll be okay.” I remember stopping at a crosswalk, and really starting to lose my touch with reality. I wasn’t recognizing where I was, and I called my roommate. They had, at some point, passed me on the street, which I only vaguely remember, and thankfully knew where I was, which was one street away from my house. I had been standing out there for 20 minutes when they got to me. I apparently did not know my name, who I was, or who they were. The next thing I clearly remember was being in bed in my apartment. If my roommate had not come and gotten me, who knows what would have happened.

With that being said, here are some things that help me get out of a dissociative episode. First things first, try to ground yourself with your senses. A common practice is naming 5 things you can see, 4 things you can touch, 3 things you can hear, 2 things you can smell and 1 thing you can taste. I find this incredibly helpful, but if I’m too far along, I’ll just start naming things I can see and talking about them (“I see a chair, it is red and has four legs”) or just rapid fire naming objects (“couch, chair, carpet, painting”). If you’re trying to help someone ground, you can ask them questions such as “name five fruits” or “name three things that are red.” It might seem kind of silly, but these questions are extremely helpful for coming back to reality.

The one thing to remember about dissociation is it is often not permanent. My episodes have lasted whole days on the occasion, but I always come out of them, which is true for most people with BPD. Dissociation also looks different for everyone, and some people with BPD do not dissociate at all. It is certainly a spectrum, and while each episode is serious, each one can look very different. If a friend reaches out to you for help with dissociating, remember to remain calm, because someone who is panicked will only make the situation worse. There are a lot more techniques for grounding out there, such as physical touch, eating, taking a shower, and many more, but different methods work better for different individuals.

I hope this post was helpful in understanding dissociation, but if you have any questions (or if I messed up any information), feel free to reach out.

-Sam

Sources

NCBI: https://www.ncbi.nlm.nih.gov/pubmed/19585341

webmd: https://www.webmd.com/mental-health/dissociation-overview#1

My Thoughts on Birthdays

milestones you never thought you’d reach

I’m trying to consistently post once a week on Fridays, but I had to slip some quick thoughts in today, because as of today, I am 21 years old. I’m finally able to do all of the things I’ve pretty much been doing illegally, but now I can’t get arrested for them! Yay! Although this is a day of celebration, I’m often really reflective on my birthday, especially when it is as big of a milestone as my 21st. In my darkest moments, I thought I would never see this day. Now it’s here, and I’m alive, and I’m okay. The passage of time and experiences can be really amazing.

I know it sounds morbid, but every year on my birthday, I wonder how much time I really have left. I really try to take each day one at a time and take good moments as they come, but I can’t help but wonder if this birthday will be my last. While I don’t see another relapse in to foreseeable future, they come like a thief in the night. I could snap at any moment, lose myself any day, start hallucinating or have an episode where I do something really drastic. It can happen, and while it’s usually a thought in the back of my mind, it comes to the forefront on days like this.

Despite the negativity, I’m really happy I’m here. I’m really happy I made it to see this day. Birthdays always feel like a fresh start to me. This might be the year I get a 4.0 in school. This might be the year I start eating healthier, start exercising more, start hanging out with my friends more. This might be the year where I don’t have a suicide attempt, where I stop self harming for good. The possibilities are endless, and now I just have to make some of these possibilities realities.

Even if these things don’t happen this year, even if I have another relapse, I have faith that I will be okay. I’ve made it through 21 years of life. I’m still here, despite everything my brain has put me through, and at the end of it all, everyday that you’re here is a beautiful day to be alive.

-Sam

Revisting Your Hometown

some tips for taking care of yourself during the holidays

TW: Self harm, suicide

As much as I love my mother, I often dread going back to my hometown to see her. While I value the time I am able to spend with her, it is often difficult to cope with the memories associated with my childhood home. I remember the constant feelings of emptiness living here when I was younger, the loneliness I felt, and how it always felt like I was walking on eggshells, trying to please everyone around me. I’m writing this in my childhood bedroom, the place I developed an addiction to cutting, where I had my first suicide attempt. It can be extremely hard to come back and revisit this.

Choosing to stay away from places that bring back bad memories is completely valid, but for those who choose to revisit these spots, here are 5 tips I use to take care of myself during the holidays.

1. Keep Yourself Busy

I can not stress how important it is to distract distract distract. If I let my mind wander, it can lead to some very dark places. The last thing I need over the holidays is to be dissociating, or suicidal, or self harming. I will go visit old friends, go shopping, read, write, listen to podcasts, anything that keeps my mind occupied.

2. Keep in contact with your friends back home

Shooting a message to my roommates back home just to check in reminds me where I was before I visited my hometown and where I will be again after I leave. It’s so grounding for me to remember that I have a life outside of my hometown, and that I will have that life again after the holidays are over.

3. Practice Self Care

I love my family very much, and enjoy spending time with them, but it can be difficult to put on a brave face all the time. I easily get tired of trying to pretend like things are okay, and if I don’t take care of myself, my emotions can get to a dangerous place. I check in with myself a lot when I’m visiting my hometown, and try to recognize when I need a break. I spend a lot of time in my room while I’m here, which is okay. It’s completely valid to take care of yourself and step away from the chaos.

4. Be Productive

As a college student, I am usually busy with schoolwork and extracurricular activities, but when the semester ends and all of that goes away, I find I can go into some of my darkest times. This goes along with keeping yourself busy, but try to do things that make you feel like you’re contributing something. Do your laundry, clean your room, get rid of old clothes/items you don’t need anymore, etc. Feeling like you’re doing something worthwhile can be rewarding and contribute to distraction.

5. Leave (if you have to)

Sometimes going to my hometown takes a horrible toll on my mental health, and I have to leave early. While I generally try not to escape things that are making me upset, if you’re feeling unsafe in your hometown, don’t stay. I’ve only had to do this once before, but the decision to go possibly saved my life. It’s okay to not revisit places if you don’t want to/are not ready. After the incident where I left early, I have been more prepared for what’s to come, but if I had decided to distance myself from this place, that would have been valid too. This isn’t about running away from your problems; this is about protecting yourself and keeping yourself healthy, and at the end of the day, sometimes you have to do what’s best for you.

The holidays are difficult for a lot of people, and if you’re one of those people, know that you’re not alone, and there are a lot of others who feel the same way. Take care of yourself this holiday season.

-Sam

The Difference Between Being Listened to and Being Heard

the best ways to listen as an ally

I have had a really profound college experience so far, but nothing has been more impactful than the Intergroup Dialogues class I took last semester. The class, for those who are unfamiliar with it, has you fill out a survey before you begin, where you list all of your social identities such as race, gender, SES, and many more. The instructors then place you into dialogue groups centered around a specific identity. The groups are compromised of half of the privileged population of that identity and half of the oppressed population. For example, my dialogue was sexual orientation, so half of the class was straight, while the other half of the class was on the spectrum. As you progress through the class, you dive deeper into controversial topics regarding the social identity, and the conversations that come from it can be simultaneously frustrating and enlightening.

I learned so much from this class, and loved the opportunity to explore my queerness within it, but my biggest takeaway was our discussions on how to actively listen and empathize. I have learned that conversation, not just education, is one of the most important parts of activism work, and a big piece of that is being able to listen. This skill, however, is not just for activists. It is crucial that allies of marginalized communities are able to actively listen to members of the community they are fighting for. This is especially true in the mental health community.

Although some mental disorders are slowly becoming destigmatized, such as depression and anxiety, many disorders are not. Bipolar disorder, borderline personality disorder, schizophrenia, and other disorders continue to be heavily stigmatized and misunderstood. If you want to be an ally for those who are suffering from mental illness, you have to hear all of our stories, even from those of us with more serious and rare mental illnesses.

If we want to help improve understanding of BPD and other stigmatized disorders, we need people who are willing to hear us, not just listen. There is a huge difference between listening to someone’s story and doing nothing, and hearing someone’s story and changing something as a result. Maybe you stop using to word “crazy” or “insane” to describe people. Maybe you educate yourself on bipolar disorder, how it’s not always just aggressive mood swings. Maybe you simply take someone’s story to heart, and work on changing a bias you previously had about a disorder. We need allies who are willing to listen, change, and take action from hearing us, not just saying “that sucks” and moving on.

I’ve been guilty of simply listening in the past. I’ve thought “this doesn’t affect me,” and left the conversation with myself at that. I understand that it takes time, effort, and practice to develop, but it is a skill that we must learn for the good of everyone. Having difficult, frustrating conversations about mental health is how we are going to make progress erasing the stigma surrounding those suffering from serious mental illnesses. Start getting educated, start having conversations, and most importantly, start to hear what people with BPD have to say.

-Sam

What is Borderline Personality Disorder?

and how to support someone who has it

So I know I said that this blog will be mostly my experience living with borderline personality disorder, but I think my experience will be easier to understand if I explain exactly what it is. Most of the information I will use is from online sources and my own knowledge of psychopathology. I am not an expert in any way shape or form, but I’ll try to be as accurate as possible.

TW: Mentions of self harm

According to the article “Personality Disorders, a Nation-based Perspective on Prevalence” by Dr R. Sansone, approximately 10 percent of the US population suffers from a personality disorder. There are 10 personality disorders in total, and often, if you have one, you have another. According to the National Institute of Mental Health, about 1.4% of US adults suffer from borderline personality disorder.

BPD (not to be confused with BD, bipolar disorder), has an extensive list of symptoms in the DSM-5, which I feel are best summarized by psycom.net: extreme emotional reactions, impulsivity, and unstable social relationships. I want to touch on more of the specific aspects of BPD in later posts (such as splitting and dissociation), because they can be more difficult to understand and I don’t want to overload you with information. Suicidality also plays a big role in BPD, which I also want to touch on in a future post. For now, I want to focus on the list on psycom.net, which again, accurately summarizes most of the symptoms.

So let’s go through each of the three main symptoms with an example from my own life. The first is inappropriate emotional reactions. I can think of many times when I’ve shut down completely from minor inconveniences, such as breaking the washing machine or accidentally saying something embarrassing in class. I remember earlier in the semester, as I was going through a really dark time, I walked out of an exam thinking I had failed. I couldn’t get the word “failure” out of my head. I felt like I needed to be punished. I was worthless, the scum of the earth, I would never be good enough, I would never be stable enough to get through college. I went home and self harmed.

Sounds like a completely normal, healthy reaction to doing poorly on an exam, right? To me, this was! When I get into a headspace like that, it is incredibly difficult to discern what is rational and what is irrational. To me, cutting after doing poorly on an exam that I thought should have been easy was the correct choice, when of course it wasn’t.

Next, we have impulsivity. Being impulsive has almost completely messed my life up several times. For example, after “failing” that exam, I emailed my academic advisor and told him I wanted to drop out. I messaged all my roommates that I would be moving out after the semester was over. I called my mom, told her I was done with college, and would not be coming back. If it wasn’t for the intervention of some really good friends, I would have followed through, and then what? I love college, and I would have been heartbroken. Many impulsive decisions like this one have almost destroyed my future.

Finally, the biggest symptom I suffer from: unstable social relationships. I can not tell you the amount of times I’ve went off on my friends for little things, or how many times my other symptoms from BPD have gotten in the way of maintaining my relationships. Currently, I have five awesome roommates, who are fortunately very understanding of my disorder, but I can not tell you the amount of times I’ve blocked and unblocked their numbers, sworn I will never talk to them again, or attempted to find other living arrangements. Of course, I mentioned that I wanted to move out after that exam. I planned on cutting all ties with them after I left, literally cut off my best friends who have been nothing but supportive of me. Why? I couldn’t tell you now, but at the time, it seemed right. It always seems right.

Wanna know the kicker? I got a B on that exam. All of that over a B. I hope this sheds light into how difficult this disorder can be, how irrational thoughts disguise themselves as rational thoughts, and how my actions, while they can not be justified, seem like the right course of action at the time.

So, how do you support someone with BPD? Well, if you’re reading this and educating yourself on the symptoms, you’re already starting to help. Understand the patterns your loved one has with BPD, recognize the warning signs of an episode, and try to be a source of support. People with BPD are not unlovable. Try not to get angry or upset with them, it will just make the situation worse. Finally, love can go a really long way. The best friends I have made in this world do not justify my actions, but love me through them. They let me know that they can’t support some of the things I do, but support me as a person, unconditionally. To me, these friendships are invaluable.

I’m going to end this post on a good note. People with BPD are able to live healthy, happy lives with the right help and support. It is a very, very difficult disorder that affects many aspects of our lives, but I believe that as we learn more about it, destigmatize it, and support each other, we will get to the life we deserve to live. I believe in us.

-Sam

Sources

psycom.net: https://www.psycom.net/depression.central.borderline.html

National Institute of Mental Health: https://www.nimh.nih.gov/health/statistics/bipolar-disorder.shtml

NCBI: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3105841/

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